The family corner
Every family is unique in how they navigate life with PNH.
Life with PNH can impact spouses, children, employers and friends. So how can you best navigate these important dynamics? Here are a few resources that may help:
Letting go of negative emotions
Taking care of yourself when someone you love has PNH
Saying yes to help
Choosing your spoons
Finding peace with your reality
Redefining family roles
Please note: The resources on this page are meant to be informational only and are not intended to replace medical advice. Always talk to your healthcare provider about any medical decisions, including how to manage the daily symptoms of PNH. Apellis Pharmaceuticals, Inc., is not affiliated with nor endorses any particular organization, and is not responsible for the content of any sites or resources we may link to from this website, and makes no guarantees about the accuracy of the information or the quality of support provided.