“Trust your body and take care of it but

reach out when something doesn't feel right.”

– Brianna, living with PNH

“I think it's important to

focus on the things we still CAN do

instead of solely thinking about the negatives. I also think it’s important to keep as much normalcy in our lives as we can...continue to do the things we value most if possible...”

– Leslie, living with PNH

“Symptoms ebb and flow; and

treatment does not necessarily equate to ‘feeling normal’ again.”

– Amanda, living with PNH

“PNH cannot take away who I really am.”

– Renee, living with PNH

“PNH may be rare and ‘invisible,’ but it’s very real. Despite all of that,

you can live and thrive with it.”

– Kristen, living with PNH