Living well
Rediscovering the joy of "yes"
Living with PNH might mean you have to say no more than you’d like – to friends, to opportunities at work, to hobbies you once loved. But what if you could say yes more often?
If ongoing symptoms are standing in your way, speak openly with your doctor about how they are impacting you
and what you want to change. Consider: what would you need to have a little more “yes” in your day?
Living your best life
Scientists point to six related elements that contribute to optimal health: emotional, occupational, physical, social, intellectual, and spiritual. The symptoms of PNH may impact all of these, but developing a plan that considers what’s most important to you can be the first step to more “yes.”
Exploring wellness in your life
Taking the first steps towards greater wellness often involves considering what’s most important to you: what areas would you most like to change? The resources below can help you get started.
Tips from an expert
Professional health and wellness coach Leslie Thorpe shares how different aspects of wellness can be impacted by PNH, and reviews strategies to help you get more out of life.
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Say “yes” to life
Leslie Thorpe
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The six dimensions of wellness
Leslie Thorpe
Leslie Thorpe was compensated by Apellis Pharmaceuticals, Inc. for the time required to develop these resources.
Partnering with your care team
Explore how your PNH symptoms may be impacting your day-to-day with this short quiz. The results can be used as a starting point to discuss options with your doctor.
Talking openly and honestly with your doctor can be the first step towards greater wellness. Prepare for the conversation with these helpful tips.
Alyce and Erin were also compensated by Apellis Pharmaceuticals, Inc. for the time required to share their stories. Every person’s experience with PNH is unique. These resources do not include individual treatment or medical advice. You should speak with your doctor about questions you may have on PNH, its symptoms, and treatment.