A place to #ReclaimYourPower

Discover strategies to help redefine
what’s possible when living with PNH.

Explore how your symptoms may be
impacting your quality of life.

Hear tips and tricks from
the PNH community.

Find support for building a
partnership with your doctor.

Visit our resource center to connect with us, as well as for answers to common questions, local events, helpful organizations, and more.

Hear more tips from the community

Check out our events and explore
stories and strategies from people with
PNH, including additional resources to
support emotional health.

Sign up for support for daily life with PNH, including tips from the community, tools that may be helpful, and news and information.