All hands in
Welcome to This is PNH, a place created for the PNH community to learn, connect and share: an opportunity to explore new information, gather ideas and support one another along the way.
All are welcome.
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All hands in
Welcome to This is PNH, a place created for the PNH community to learn, connect and share: an opportunity to explore new information, gather ideas and support one another along the way.
All are welcome.
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Find tools that can help make everyday life with PNH a little easier, including strategies to help communicate, forge deeper connections and manage stress.
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Explore resources for those who love and care for people with PNH.
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See how speaking up about ongoing PNH symptoms may help you have more productive conversations with your doctor.
Welcome to This is PNH, a place created for the PNH community to learn, connect and share: an opportunity to explore new information, gather ideas and support one another along the way.
All are welcome.
A place for PNH support
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“There is support and information out there.
You are not alone.
There are people fighting with you, even when it doesn’t feel that way.”
– Sara, living with PNH
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“PNH is something that can be explained medically, but everyone is different.
Learning from others is the most beneficial way to make sense of this journey we’re on.”
– Person living with PNH
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“PNH cannot take away who I really am.”
– Renee, living with PNH
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“PNH may be rare and ‘invisible,’ but it’s very real. Despite all of that,
you can live and thrive with it.”
– Kristen, living with PNH
Sign up to be connected to a dedicated local resource who can help support daily life with PNH, including sharing tips from the community, tools that may be helpful, and news and information.
