All hands in

Welcome to This is PNH, a place created for the PNH community to learn, connect and share: an opportunity to explore new information, gather ideas and support one another along the way.

All are welcome.

Welcome to This is PNH, a place created for the PNH community to learn, connect and share: an opportunity to explore new information, gather ideas and support one another along the way.

All are welcome.

Your opinion matters

Explore the science behind PNH, a rare disease in which the body attacks and destroys its own red blood cellsred blood cellsThe most common type of blood cell. Their job is to carry oxygen using an important molecule, hemoglobin, around the body., leading to fatiguefatigueExtreme tiredness or exhaustion. Fatigue is one of the most common symptoms of PNH., weakness, headaches and chest pain.

Take a closer look at daily life with PNH, including strategies to help build resilience in the face of fatigue.

Visit our resource center for the answers to common questions, places to go for support and strategies to navigate the everyday.

Discover tips and tools to help you better explain PNH in a way that helps others easily understand.

Sign up to be connected to a dedicated local resource who can help support daily life with PNH, including sharing tips from the community, tools that may be helpful, and news and information.