All hands in

Welcome to This is PNH, a place created for the PNH community to learn, connect and share: an opportunity to explore new information, gather ideas and support one another along the way.

All are welcome.

Welcome to This is PNH, a place created for the PNH community to learn, connect and share: an opportunity to explore new information, gather ideas and support one another along the way.

All are welcome.

A growing community

Stories, tips and encouragement

Tools for emotional well-being

Visit our resource center for the answers to common questions, places to go for support and strategies to navigate the everyday.

Discover tips and tools to help
you more effectively partner with
your doctor.

Sign up to be connected to a dedicated local resource who can help support daily life with PNH, including sharing tips from the community, tools that may be helpful, and news and information.