Whether you’re a partner, spouse, friend or family member, helping someone with PNH is an important job, but it’s just as important to take care of your own well-being along the way. Being someone else’s support person can mean you wear many hats. Whether that’s picking up more responsibilities at home, becoming an insurance expert, or stepping in to offer a ride, it can be tough to juggle it all on top of your everyday life. Here are a few resources that can help.

Please note: The resources on this page are meant to be informational only and are not intended to replace medical advice. Always talk to your healthcare provider about any medical decisions, including how to manage the daily symptoms of PNH. Apellis Pharmaceuticals, Inc., is not affiliated with nor endorses any particular organization, and is not responsible for the content of any sites or resources we may link to from this website, and makes no guarantees about the accuracy of the information or the quality of support provided.