PNH perspectives

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  • Managing daily career demands with PNH


    Jordan

    J
  • Rediscovering
    “yes”


    Eric

    E
  • Help is not
    the enemy


    Jason

    J
  • Celebrating your di-aversary


    Jessi

    J
  • Advocating with honesty and vulnerability


    Eric

    E
  • Gaining your
    stride back


    Jessi

    J
  • Saying goodbye
    to guilt


    Jason

    J
  • Voicing your needs with your care team


    Jessi

    J
  • Staying physically active by creating a daily routine


    Jessi

    J
  • Connecting with others with PNH


    Jessi

    J
  • How I live in
    the moment


    Leslie

    L
  • The power of the buddy system


    Leslie

    L
  • Rediscovering the joy of “yes”


    Jessi

    J
  • Sharing your PNH journey with your partner


    Erin

    E
  • Becoming your own best advocate


    Leslie

    L
  • Identifying your
    ‘go’ days


    Erin

    E
  • Saying “yes” to my bucket list


    Kim

    K
  • Embracing optimism to help find your (new) purpose


    Jordan

    J
  • Using resiliency to handle the twists and turns of PNH


    Jordan

    J
  • Turning the impossible into possible


    Eric

    E
  • Making PNH and fitness work together


    Jordan

    J
  • Redefining active and embracing fitness with PNH


    Erin

    E
  • Being organized when you’re forgetful


    Alyce

    A
  • Putting yourself
    on the list


    Jessi

    J
  • Letting go of the burden complex


    Alyce

    A
  • Articulating your needs at work


    Jason

    J
  • Managing the
    daily grind


    Jessi

    J
  • Saying yes to
    the world


    Jason

    J
  • What strength
    means to me


    Alyce

    A
  • Having honest conversations with your boss


    Leslie

    L
  • Thriving with PNH


    Jordan

    J
  • Finding peace with your reality


    Alyce

    A
  • Embracing
    self-care


    Alyce

    A
  • Using your voice to find the right resources


    Eric

    E
  • Not settling for the status quo


    Jessi

    J
  • Explaining PNH
    to your partner


    Jordan

    J
  • Choosing your
    spoons


    Jason

    J
  • Evolving your mindset


    Kim

    K
  • Being empowered with your doctor


    Kim

    K
  • Being open to life’s possibilities


    Jordan

    J
  • My PNH
    journey


    Patricia

    P
  • Turning vulnerability into a motivator


    Kim

    K
  • You’ve got this: tips for stress management


    Erin

    E
  • A little
    more “yes”


    Alyce

    A
  • Charting a
    new course


    Eric

    E
  • Giving yourself the gift of kindness


    Leslie

    L
  • Finding joy in saying “yes”


    Kim

    K
  • You + your doctor =
    more of the life you want


    Erin

    E
  • How to build a true partnership with your doctor


    Erin

    E
  • Using your voice to become an advocate


    Jessi

    J
  • Prioritizing socialization


    Jessi

    J

These resources show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.