PNH perspectives

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  • Staying physically active by creating a daily routine


    Jessi

    J
  • How I live in
    the moment


    Leslie

    L
  • A little
    more “yes”


    Alyce

    A
  • Voicing your needs with your care team


    Jessi

    J
  • Redefining active and embracing fitness with PNH


    Erin

    E
  • You + your doctor =
    more of the life you want


    Erin

    E
  • Using resiliency to handle the twists and turns of PNH


    Jordan

    J
  • Embracing optimism to help find your (new) purpose


    Jordan

    J
  • Managing the
    daily grind


    Jessi

    J
  • My PNH
    journey


    Patricia

    P
  • How to build a true partnership with your doctor


    Erin

    E
  • Putting yourself
    on the list


    Jessi

    J
  • Becoming your own best advocate


    Leslie

    L
  • The power of the buddy system


    Leslie

    L
  • Saying goodbye
    to guilt


    Jason

    J
  • Finding peace with your reality


    Alyce

    A
  • Using your voice to find the right resources


    Eric

    E
  • Making PNH and fitness work together


    Jordan

    J
  • Giving yourself the gift of kindness


    Leslie

    L
  • Explaining PNH
    to your partner


    Jordan

    J
  • Letting go of the burden complex


    Alyce

    A
  • What strength
    means to me


    Alyce

    A
  • Embracing
    self-care


    Alyce

    A
  • Having honest conversations with your boss


    Leslie

    L
  • Identifying your
    ‘go’ days


    Erin

    E
  • Connecting with others with PNH


    Jessi

    J
  • Sharing your PNH journey with your partner


    Erin

    E
  • Choosing your
    spoons


    Jason

    J
  • Saying yes to
    the world


    Jason

    J
  • Articulating your needs at work


    Jason

    J
  • Help is not
    the enemy


    Jason

    J
  • Managing daily career demands with PNH


    Jordan

    J
  • Using your voice to become an advocate


    Jessi

    J
  • Being organized when you’re forgetful


    Alyce

    A
  • You’ve got this: tips for stress management


    Erin

    E

These resources show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.