Events
Upcoming events
Throughout the year, we’ll be hosting a series of events for the PNH community.
Hear from members of the PNH community – people actually living with PNH. Learn about the science behind PNH. Take a deep dive into strategies to help you better manage your life with PNH.
Below is a list of upcoming events with descriptions and links to register. You’ll receive specific location information once you’ve registered. Hope to “see” you soon! Don’t forget … the Aplastic Anemia and MDS International Foundation also offers community events, which can be found here.
Previous events
Explore community conversations about life with PNH that you may have missed. You can watch the event or just listen to audio clips.
Sort by
-
Community Conversations: Finding balance as a caregiver without feeling guilty
-
Audio onlyAudio only
Community Conversations: Balancing a career with caregiving
-
Audio onlyAudio only
Community Conversations: Managing stress as a caregiver
-
Audio onlyAudio only
Community Conversations: Putting yourself on the list
-
Audio onlyAudio only
Community Conversations: Answering your questions as a PNH caregiver
-
Community Conversations: Advocating for your needs
-
Audio onlyAudio only
Community Conversations: Speaking up with friends and family
-
Audio onlyAudio only
Community Conversations: Finding your voice with your doctor
-
Audio onlyAudio only
Community conversations: Talking to your boss
-
Audio onlyAudio only
Community Conversations: Answering your questions about advocating for yourself
-
Community Conversations: Managing Daily Life with PNH
-
Audio onlyAudio only
Community Conversations: Managing everyday tasks
-
Audio onlyAudio only
Community Conversations: Finding self-compassion
-
Audio onlyAudio only
Community Conversations: Parenting
-
Audio onlyAudio only
Community Conversations: Answering your questions about managing daily life with PNH
These videos and audio clips feature real people living with or caring for someone living with PNH, along with tips from an expert. These individuals were compensated by Apellis for the time involved in sharing their story in their own words. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms and treatment.