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  • Daily life with PNH: Asking for what you need

    Life can be difficult and living with PNH has its own set of challenges. Join us as we dive into small steps you can take to help you better care for your emotional health and speak up about your needs.
    Please note that this program is intended for U.S. residents only

    7/16/2022

    10:00 AM–11:00 AM PT

    Hosted by Brenda
  • Daily life with PNH: Asking for what you need

    Life can be difficult and living with PNH has its own set of challenges. Join us as we dive into small steps you can take to help you better care for your emotional health and speak up about your needs.
    Please note that this program is intended for U.S. residents only

    7/27/2022

    9:00 AM–10:00 AM CT

    Hosted by Kristen
  • Daily life with PNH: Managing stress

    Living with PNH can impact many aspects of your daily life. Join us as we explore strategies that may help you better manage the everyday stress that comes from life with PNH.
    Please note that this program is intended for U.S. residents only

    8/10/2022

    7:30 PM–8:30 PM ET

    Hosted by Mary
  • Daily life with PNH: Asking for what you need

    Life can be difficult and living with PNH has its own set of challenges. Join us as we dive into small steps you can take to help you better care for your emotional health and speak up about your needs.
    Please note that this program is intended for U.S. residents only

    9/8/2022

    7:30 PM–8:30 PM ET

    Hosted by Mary

    This is an in person event in N/A, Virtual

Previous events

Explore community conversations about life with PNH that you may have missed. You can watch the event or just listen to audio clips.

Sort by

  • Community Conversations: Finding balance as a caregiver without feeling guilty

  • Audio only
    US-PNH-2200022 v1.0
    Audio only
    US-PNH-2200022 v1.0

    Community Conversations: Balancing a career with caregiving

  • Audio only
    US-PNH-2200023 v1.0
    Audio only
    US-PNH-2200023 v1.0

    Community Conversations: Managing stress as a caregiver

  • Audio only
    US-PNH-2200024 v1.0
    Audio only
    US-PNH-2200024 v1.0

    Community Conversations: Putting yourself on the list

  • Audio only
    US-PNH-2200025 v1.0
    Audio only
    US-PNH-2200025 v1.0

    Community Conversations: Answering your questions as a PNH caregiver

  • Community Conversations: Advocating for your needs

  • Audio only
    US-PNH-2100246 v1.0
    Audio only
    US-PNH-2100246 v1.0

    Community Conversations: Speaking up with friends and family

  • Audio only
    US-PNH-2100247 v1.0
    Audio only
    US-PNH-2100247 v1.0

    Community Conversations: Finding your voice with your doctor

  • Audio only
    US-PNH-2100248 v1.0
    Audio only
    US-PNH-2100248 v1.0

    Community conversations: Talking to your boss

  • Audio only
    US-PNH-2100249 v1.0
    Audio only
    US-PNH-2100249 v1.0

    Community Conversations: Answering your questions about advocating for yourself

  • Community Conversations: Managing Daily Life with PNH

  • Audio only
    US-PNH-2100191 v1.0
    Audio only
    US-PNH-2100191 v1.0

    Community Conversations: Managing everyday tasks

  • Audio only
    US-PNH-2100192 v2.0
    Audio only
    US-PNH-2100192 v2.0

    Community Conversations: Finding self-compassion

  • Audio only
    US-PNH-2100193 v1.0
    Audio only
    US-PNH-2100193 v1.0

    Community Conversations: Parenting

  • Audio only
    US-PNH-2100194 v1.0
    Audio only
    US-PNH-2100194 v1.0

    Community Conversations: Answering your questions about managing daily life with PNH

These videos and audio clips feature real people living with or caring for someone living with PNH, along with tips from an expert. These individuals were compensated by Apellis for the time involved in sharing their story in their own words. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms and treatment.