Explaining PNH
Explaining PNH
Helping others understand
PNH is not a disease you’re likely to hear about in TV commercials or from other people. The science of PNH is complex, and the symptoms can be hard to see. So how do you easily explain it to others?
Here are a few quick facts to help tell the story:
To see how ongoing PNH symptoms might be impacting your daily life, checkout out our symptom questionnaire. This interactive tool can help you identify how you’re feeling so you can share it with those around you.
Tips and tools
Social platforms are a great way to help educate others about PNH. These visuals can be downloaded and shared to help explain PNH to others.
Wallet card
Download and print this file to create wallet cards that can help explain PNH more easily to others.
Access more resources like this
For personalized support with daily life with PNH, including tips from the community, tools that may be helpful, and news and information, sign up here.
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