Living well
Exploring wellness with PNH
Scientists point to 6 related elements that contribute to optimal health: emotional, occupational, physical, social, intellectual, and spiritual. The symptoms of PNH may impact all of these, but a plan that considers what’s most important to you can be a helpful step toward improved wellness.
Tips and tools from an expert
Professional health and wellness coach Leslie Thorpe shares how different aspects of wellness can be impacted by PNH, and reviews strategies to help you get more out of life.
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Say “yes” to life
Leslie Thorpe
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The six dimensions of wellness
Leslie Thorpe
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Go from overwhelmed to empowered
Leslie Thorpe
Leslie Thorpe was compensated by Apellis Pharmaceuticals, Inc. for the time required to develop these resources.
Community stories
Hear how people living with PNH advocated to get more of what they want in their lives.
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“When I was first diagnosed, the extreme fatigue prevented me from actually living my life. It took me a while to realize things could be different, but once I did, it was life-changing.”
– Alyce, living with PNH
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“I wish I had this wellness tool when I was first diagnosed with PNH. It would have had such an impact on how I approached my next steps — I could have identified areas that I needed to focus on easier and earlier than I did on my own.”
– Eric, living with PNH
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“I’m always filling out questionnaires that don’t offer any solutions. This wellness tool is different — it offers suggestions on what to do with my results, and I really like that!”
– Erin, living with PNH
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“I don’t want to miss out on activities with my family and friends — it’s all so important to me. Trust your instincts, and don’t settle for the status quo if it’s not working for you.”
– Kim, living with PNH