Wellness tool
Leaving doubt behind
The reality of life with PNH means you won’t own every moment, but you can own more of them. The first step is putting fear in the back seat and exploring your options. This tool can help you understand the impact PNH has on your overall wellness, how to prioritize what you want most, and then map out the next steps to put yourself back in the driver’s seat.
Focus for increased wellness
The dimensions noted below are the ones you selected as most important to you. Within each dimension the areas with the lowest scores are your greated opportunity for improvement.
My Symptoms
My Emotions
Talk to your doctor about changing your reality.
Things to discuss
- Impact of my symptoms on my quality of life
- What's important to me for my overall happiness
- What I'd like to change
Questions to consider
- Why am I continuing to experience these symptoms?
- What are my lab tests telling us?
- What can we do to improve these symptoms so I can try to do more of what I love?
- Do we need to make any changes to my treatment or lifestyle?
This tool is for your information only and does not contain medical advice. Please talk to your doctor about any questions you have regarding PNH, symptoms, or treatment.
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