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  • Apellis Resource Overview

    Join us for a guided tour of educational resources and tools found on ThisisPNH.com that may help in managing daily life with PNH. From curated information to perspectives from people with PNH, we hope these resources are useful to the whole PNH community.

    Please note that this program is intended for U .S. residents only

    December 2, 2021

    6:30 pm CT

    Hosted by Rebecca
  • Daily life with PNH: Managing stress

    Living with PNH can impact many aspects of your daily life. Join us as we explore strategies that may help you better manage the everyday stress that comes from life with PNH.

    Please note that this program is intended for U.S. residents only

    December 9, 2021

    6:00 pm PT

    Hosted by Rebecca

Previous events

  • Community Conversations:
    Advocating for your needs

  • Audio only
    US-PNH-2100246 v1.0

    Community Conversations: Speaking up with friends and family

  • Audio only
    US-PNH-2100247 v1.0

    Community Conversations: Finding your voice with your doctor

  • Audio only
    US-PNH-2100248 v1.0

    Community conversations: Talking to your boss

  • Audio only
    US-PNH-2100249 v1.0

    Community Conversations: Answering your questions

  • Community Conversations:
    Advocating for your needs

  • Community Conversations:
    Managing Daily Life with PNH

  • Audio only
    US-PNH-2100191 v1.0

    Community Conversations: Managing everyday tasks

  • Audio only
    US-PNH-2100192 v1.0

    Community Conversations: Finding self-compassion

  • Audio only
    US-PNH-2100193 v1.0

    Community Conversations: Parenting

  • Audio only
    US-PNH-2100194 v1.0

    Community Conversations: Answering your questions

These videos and audio clips feature real people living with or caring for someone living with PNH, along with tips from an expert. These individuals were compensated by Apellis for the time involved in sharing their story in their own words. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms and treatment.