Daily Life

Navigating life with PNH

Knowing the facts about PNH and exploring ways to maintain overall wellness can make everyday life with the disease a little bit easier.

Maintaining wellness

Pursuing overall wellness is an ongoing personal journey for all of us. Print this page to track your weekly steps to wellness. At the end of each week, note your accomplishments and reflections, and use them to help guide your next steps. You may also want to share this with your doctor when considering your daily strategies.

Global Genes’ Adapting to Limitations series may provide helpful context for daily considerations like work, your home environment, self-care, asking for help and living up to promises, among other things. You can access the series here.