PNH perspectives

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  • Giving yourself the gift of kindness


    Leslie

    L
  • Managing the
    daily grind


    Jessi

    J
  • Connecting with others with PNH


    Jessi

    J
  • Being organized when you’re forgetful


    Alyce

    A
  • Becoming your own best advocate


    Leslie

    L
  • The power of the buddy system


    Leslie

    L
  • Using your voice to find the right resources


    Eric

    E
  • Using your voice to become an advocate


    Jessi

    J
  • Staying positive even when it feels impossible


    Jillian

    J
  • Voicing your needs with your care team


    Jessi

    J
  • Putting yourself
    on the list


    Jessi

    J
  • Using resiliency to handle the twists and turns of PNH


    Jordan

    J
  • Managing daily career demands with PNH


    Jordan

    J
  • Saying goodbye
    to guilt


    Jason

    J
  • How I live in
    the moment


    Leslie

    L
  • Making self-compassion a daily practice


    Jillian

    J
  • Identifying your
    ‘go’ days


    Erin

    E
  • How to build a true partnership with your doctor


    Erin

    E
  • Having honest conversations with your boss


    Leslie

    L
  • Articulating your needs at work


    Jason

    J
  • Creating mindful
    moments


    Jillian

    J
  • Using your voice to connect with others


    Jillian

    J
  • Making connections with the PNH community


    Jillian

    J
  • Making PNH and fitness work together


    Jordan

    J
  • Letting go of what others expect of you


    Jillian

    J
  • Embracing
    self-care


    Alyce

    A
  • Saying yes to
    the world


    Jason

    J
  • You’ve got this: tips for stress management


    Erin

    E
  • Finding peace with your reality


    Alyce

    A
  • Embracing optimism to help find your (new) purpose


    Jordan

    J
  • What strength
    means to me


    Alyce

    A
  • Help is not
    the enemy


    Jason

    J
  • Staying physically active by creating a daily routine


    Jessi

    J
  • Redefining active and embracing fitness with PNH


    Erin

    E
  • Explaining PNH
    to your partner


    Jordan

    J
  • Choosing your
    spoons


    Jason

    J
  • Sharing your PNH journey with your partner


    Erin

    E
  • Letting go of the burden complex


    Alyce

    A

These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.