PNH perspectives
Explore these everyday stories from people living with PNH
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Redefining active and embracing fitness with PNH
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Using resiliency to handle the twists and turns of PNH
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Making PNH and fitness work together
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Having honest conversations with your boss
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Sharing your PNH journey with your partner
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Making connections with the PNH community
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Making self-compassion a daily practice
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Becoming your own best advocate
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Letting go of what others expect of you
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Using your voice to connect with others
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Managing the
daily grind -
Being organized when you’re forgetful
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Putting yourself
on the list -
Identifying your
‘go’ days -
Staying physically active by creating a daily routine
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The power of the buddy system
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Using your voice to become an advocate
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What strength
means to me -
Giving yourself the gift of kindness
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Staying positive even when it feels impossible
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Embracing optimism to help find your (new) purpose
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Help is not
the enemy -
How I live in
the moment -
Explaining PNH
to your partner -
Voicing your needs with your care team
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Articulating your needs at work
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You’ve got this: tips for stress management
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Finding peace with your reality
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Connecting with others with PNH
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Embracing
self-care -
Creating mindful
moments -
Letting go of the burden complex
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Using your voice to find the right resources
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Managing daily career demands with PNH
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Choosing your
spoons -
How to build a true partnership with your doctor
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Saying goodbye
to guilt -
Saying yes to
the world
These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.