PNH perspectives
Explore these everyday stories from people living with PNH
Filter
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Giving yourself the gift of kindness
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How I live in
the moment -
Letting go of the burden complex
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The power of the buddy system
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Choosing your
spoons -
What strength means to me
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Embracing
self-care -
Articulating your needs at work
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Finding peace with your reality
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Saying goodbye to guilt
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Becoming your own best advocate
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Being organized when you’re forgetful
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Help is not
the enemy -
Having honest conversations with your boss
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Saying yes to
the world
These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.