PNH Perspectives

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  • Saying goodbye
    to guilt


    Jason

    J
  • Becoming your own best advocate


    Leslie

    L
  • Putting yourself
    on the list


    Jessi

    J
  • The power of the buddy system


    Leslie

    L
  • What strength
    means to me


    Alyce

    A
  • Redefining active and embracing fitness with PNH


    Erin

    E
  • Managing daily career demands with PNH


    Jordan

    J
  • Being organized when you’re forgetful


    Alyce

    A
  • Saying yes to
    the world


    Jason

    J
  • Staying physically active by creating a daily routine


    Jessi

    J
  • Using your voice to become an advocate


    Jessi

    J
  • Finding peace with your reality


    Alyce

    A
  • Making PNH and fitness work together


    Jordan

    J
  • How I live in
    the moment


    Leslie

    L
  • Embracing optimism to help find your (new) purpose


    Jordan

    J
  • Letting go of the burden complex


    Alyce

    A
  • Embracing
    self-care


    Alyce

    A
  • Explaining PNH
    to your partner


    Jordan

    J
  • Articulating your needs at work


    Jason

    J
  • Voicing your needs with your care team


    Jessi

    J
  • Sharing your PNH journey with your partner


    Erin

    E
  • Giving yourself the gift of kindness


    Leslie

    L
  • Managing the
    daily grind


    Jessi

    J
  • Help is not
    the enemy


    Jason

    J
  • Connecting with others with PNH


    Jessi

    J
  • Identifying your
    ‘go’ days


    Erin

    E
  • Choosing your
    spoons


    Jason

    J
  • Using resiliency to handle the twists and turns of PNH


    Jordan

    J
  • How to build a true partnership with your doctor


    Erin

    E
  • My PNH
    journey


    Patricia

    P
  • Using your voice to find the right resources


    Eric

    E
  • You’ve got this: tips for stress management


    Erin

    E
  • Having honest conversations with your boss


    Leslie

    L

These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.