PNH Perspectives
Explore these everyday stories from people living with PNH
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Embracing optimism to help find your (new) purpose
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Staying physically active by creating a daily routine
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Explaining PNH
to your partner -
Managing the
daily grind -
Using your voice to connect with others
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The power of the buddy system
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Using resiliency to handle the twists and turns of PNH
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Staying positive even when it feels impossible
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How to build a true partnership with your doctor
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Letting go of the burden complex
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Making self-compassion a daily practice
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Choosing your
spoons -
Being organized when you’re forgetful
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You’ve got this: tips for stress management
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Identifying your
‘go’ days -
Finding peace with your reality
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Redefining active and embracing fitness with PNH
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Voicing your needs with your care team
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Connecting with others with PNH
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Saying goodbye
to guilt -
Giving yourself the gift of kindness
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Saying yes to
the world -
Making connections with the PNH community
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Articulating your needs at work
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Making PNH and fitness work together
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Using your voice to find the right resources
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Letting go of what others expect of you
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Using your voice to become an advocate
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Help is not
the enemy -
Embracing
self-care -
Putting yourself
on the list -
Having honest conversations with your boss
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How I live in
the moment -
Creating mindful
moments -
My PNH
journey -
What strength
means to me -
Becoming your own best advocate
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Managing daily career demands with PNH
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Sharing your PNH journey with your partner
These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.