PNH Perspectives

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  • Embracing optimism to help find your (new) purpose


    Jordan

    J
  • Staying physically active by creating a daily routine


    Jessi

    J
  • Explaining PNH
    to your partner


    Jordan

    J
  • Managing the
    daily grind


    Jessi

    J
  • Using your voice to connect with others


    Jillian

    J
  • The power of the buddy system


    Leslie

    L
  • Using resiliency to handle the twists and turns of PNH


    Jordan

    J
  • Staying positive even when it feels impossible


    Jillian

    J
  • How to build a true partnership with your doctor


    Erin

    E
  • Letting go of the burden complex


    Alyce

    A
  • Making self-compassion a daily practice


    Jillian

    J
  • Choosing your
    spoons


    Jason

    J
  • Being organized when you’re forgetful


    Alyce

    A
  • You’ve got this: tips for stress management


    Erin

    E
  • Identifying your
    ‘go’ days


    Erin

    E
  • Finding peace with your reality


    Alyce

    A
  • Redefining active and embracing fitness with PNH


    Erin

    E
  • Voicing your needs with your care team


    Jessi

    J
  • Connecting with others with PNH


    Jessi

    J
  • Saying goodbye
    to guilt


    Jason

    J
  • Giving yourself the gift of kindness


    Leslie

    L
  • Saying yes to
    the world


    Jason

    J
  • Making connections with the PNH community


    Jillian

    J
  • Articulating your needs at work


    Jason

    J
  • Making PNH and fitness work together


    Jordan

    J
  • Using your voice to find the right resources


    Eric

    E
  • Letting go of what others expect of you


    Jillian

    J
  • Using your voice to become an advocate


    Jessi

    J
  • Help is not
    the enemy


    Jason

    J
  • Embracing
    self-care


    Alyce

    A
  • Putting yourself
    on the list


    Jessi

    J
  • Having honest conversations with your boss


    Leslie

    L
  • How I live in
    the moment


    Leslie

    L
  • Creating mindful
    moments


    Jillian

    J
  • My PNH
    journey


    Patricia

    P
  • What strength
    means to me


    Alyce

    A
  • Becoming your own best advocate


    Leslie

    L
  • Managing daily career demands with PNH


    Jordan

    J
  • Sharing your PNH journey with your partner


    Erin

    E

These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.