PNH perspectives
Explore these everyday stories from people living with PNH
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Saying goodbye to guilt
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Finding peace with your reality
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Using your voice to find the right resources
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Being organized when you’re forgetful
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Becoming your own best advocate
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Having honest conversations with your boss
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Using your voice to become an advocate
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Articulating your needs at work
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The power of the buddy system
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Embracing
self-care -
Letting go of the burden complex
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How I live in
the moment -
Saying yes to
the world -
Giving yourself the gift of kindness
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Help is not
the enemy -
Choosing your
spoons -
What strength means to me
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Using your voice to connect with others
These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.