PNH perspectives
Explore these everyday stories from people living with PNH
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Giving yourself the gift of kindness
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Managing the
daily grind -
Connecting with others with PNH
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Being organized when you’re forgetful
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Becoming your own best advocate
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The power of the buddy system
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Using your voice to find the right resources
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Using your voice to become an advocate
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Staying positive even when it feels impossible
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Voicing your needs with your care team
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Putting yourself
on the list -
Using resiliency to handle the twists and turns of PNH
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Managing daily career demands with PNH
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Saying goodbye
to guilt -
How I live in
the moment -
Making self-compassion a daily practice
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Identifying your
‘go’ days -
How to build a true partnership with your doctor
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Having honest conversations with your boss
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Articulating your needs at work
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Creating mindful
moments -
Using your voice to connect with others
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Making connections with the PNH community
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Making PNH and fitness work together
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Letting go of what others expect of you
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Embracing
self-care -
Saying yes to
the world -
You’ve got this: tips for stress management
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Finding peace with your reality
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Embracing optimism to help find your (new) purpose
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What strength
means to me -
Help is not
the enemy -
Staying physically active by creating a daily routine
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Redefining active and embracing fitness with PNH
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Explaining PNH
to your partner -
Choosing your
spoons -
Sharing your PNH journey with your partner
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Letting go of the burden complex
These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.