PNH Perspectives
Explore these everyday stories from people living with PNH
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Saying goodbye
to guilt -
Becoming your own best advocate
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Putting yourself
on the list -
The power of the buddy system
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What strength
means to me -
Redefining active and embracing fitness with PNH
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Managing daily career demands with PNH
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Being organized when you’re forgetful
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Saying yes to
the world -
Staying physically active by creating a daily routine
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Using your voice to become an advocate
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Finding peace with your reality
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Making PNH and fitness work together
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How I live in
the moment -
Embracing optimism to help find your (new) purpose
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Letting go of the burden complex
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Embracing
self-care -
Explaining PNH
to your partner -
Articulating your needs at work
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Voicing your needs with your care team
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Sharing your PNH journey with your partner
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Giving yourself the gift of kindness
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Managing the
daily grind -
Help is not
the enemy -
Connecting with others with PNH
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Identifying your
‘go’ days -
Choosing your
spoons -
Using resiliency to handle the twists and turns of PNH
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How to build a true partnership with your doctor
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My PNH
journey -
Using your voice to find the right resources
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You’ve got this: tips for stress management
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Having honest conversations with your boss
These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.