PNH perspectives

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  • Redefining active and embracing fitness with PNH


    Erin

    E
  • Using resiliency to handle the twists and turns of PNH


    Jordan

    J
  • Making PNH and fitness work together


    Jordan

    J
  • Having honest conversations with your boss


    Leslie

    L
  • Sharing your PNH journey with your partner


    Erin

    E
  • Making connections with the PNH community


    Jillian

    J
  • Making self-compassion a daily practice


    Jillian

    J
  • Becoming your own best advocate


    Leslie

    L
  • Letting go of what others expect of you


    Jillian

    J
  • Using your voice to connect with others


    Jillian

    J
  • Managing the
    daily grind


    Jessi

    J
  • Being organized when you’re forgetful


    Alyce

    A
  • Putting yourself
    on the list


    Jessi

    J
  • Identifying your
    ‘go’ days


    Erin

    E
  • Staying physically active by creating a daily routine


    Jessi

    J
  • The power of the buddy system


    Leslie

    L
  • Using your voice to become an advocate


    Jessi

    J
  • What strength
    means to me


    Alyce

    A
  • Giving yourself the gift of kindness


    Leslie

    L
  • Staying positive even when it feels impossible


    Jillian

    J
  • Embracing optimism to help find your (new) purpose


    Jordan

    J
  • Help is not
    the enemy


    Jason

    J
  • How I live in
    the moment


    Leslie

    L
  • Explaining PNH
    to your partner


    Jordan

    J
  • Voicing your needs with your care team


    Jessi

    J
  • Articulating your needs at work


    Jason

    J
  • You’ve got this: tips for stress management


    Erin

    E
  • Finding peace with your reality


    Alyce

    A
  • Connecting with others with PNH


    Jessi

    J
  • Embracing
    self-care


    Alyce

    A
  • Creating mindful
    moments


    Jillian

    J
  • Letting go of the burden complex


    Alyce

    A
  • Using your voice to find the right resources


    Eric

    E
  • Managing daily career demands with PNH


    Jordan

    J
  • Choosing your
    spoons


    Jason

    J
  • How to build a true partnership with your doctor


    Erin

    E
  • Saying goodbye
    to guilt


    Jason

    J
  • Saying yes to
    the world


    Jason

    J

These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.