PNH perspectives

Filter

  • Saying goodbye to guilt


    Jason

    J
  • Finding peace with your reality


    Alyce

    A
  • Using your voice to find the right resources


    Eric

    E
  • Being organized when you’re forgetful


    Alyce

    A
  • Becoming your own best advocate


    Leslie

    L
  • Having honest conversations with your boss


    Leslie

    L
  • Using your voice to become an advocate


    Jessi

    J
  • Articulating your needs at work


    Jason

    J
  • The power of the buddy system


    Leslie

    L
  • Embracing
    self-care


    Alyce

    A
  • Letting go of the burden complex


    Alyce

    A
  • How I live in
    the moment


    Leslie

    L
  • Saying yes to
    the world


    Jason

    J
  • Giving yourself the gift of kindness


    Leslie

    L
  • Help is not
    the enemy


    Jason

    J
  • Choosing your
    spoons


    Jason

    J
  • What strength means to me


    Alyce

    A
  • Using your voice to connect with others


    Jillian

    J

These videos show real people living with PNH, telling their story in their own words. These individuals were compensated by Apellis for the time required to share their story. Every person’s experience with PNH is unique. As always, talk to your healthcare provider about questions you may have on PNH, its symptoms, and treatment.